I've been taking Gabapentin or 0ver a month now. Gabapentin is a medication in pill form. I take one pill, three times a day. It was working great in the beginning but now it doesn't seem to be working as well as it was. The pin point of my back pain is just above the bottom of my tail bone, and then it radiates. There has never been an injury associated with the pain so my neurologist is assuming the pain has to do with nerve damage and the way the MS is displaying itself. The pain radiates up my back and has been making the muscles in my upper back and neck sore. It is also causing a lot of pain in my hips which can stop me in my tracks.
Along with the Gabapentin, I have continued to take Tramacet (again a pill but you can take it every 4-6 hours as needed). While it's more of a side effect of the medication, it helps a bit with my fatigue. Nothing else ever has which is part of why I continue to take it. It also helps with the overall pain.
I'm still waiting to hear back from the Tysabri Coordinator about when my start date is. I was hoping it wouldn't be too close to the holidays just in case I have an adverse reaction. Hopefully all will go well and that won't happen.
Along with the Gabapentin, I have continued to take Tramacet (again a pill but you can take it every 4-6 hours as needed). While it's more of a side effect of the medication, it helps a bit with my fatigue. Nothing else ever has which is part of why I continue to take it. It also helps with the overall pain.
I'm still waiting to hear back from the Tysabri Coordinator about when my start date is. I was hoping it wouldn't be too close to the holidays just in case I have an adverse reaction. Hopefully all will go well and that won't happen.
3 comments:
I have a friend with MS who SWEARS by her Tysabri. I saw her a few weeks ago and she looked fantastic, walking better than I had EVER seen her! (We were both DX about 20 years ago.) I took the Copaxone route, am in power chair, can't stand---so....GOOD LUCK!)
I've been having the same tailbone pain and believe it or not it's due to a TMJ problem. Have you looked at the connection between MS and TMJ disorders? Ever had braces, wisdom teeth or molars removed? xx
@CCB - thanks for the TMJ suggestion. I'm going to do some research about it.
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